CHINCHILLA'S Adam "Robbo" Robinson is a "typical 21-year-old" who likes hanging out with his mates and hates being told to "be careful".
His lives by the motto "life without limits".
But life with the congenital bone condition carpal tarsal osteolysis means Robbo has to take precautions his friends probably never would.
While he waits for a kidney transplant, he spends 12hrs a night hooked up to dialysis and last year his mum Bronwyn spent sleepless nights praying he would survive an infection.
Robbo said he would have to keep relying on the dialysis to keep him alive until a kidney donor was found for him.
Meanwhile, his Chinchilla community has been making sure families like the Robinsons could rely on more than just crossed fingers while they waited.
The first Chinchilla Big Red Kidney Walk will take off this Sunday to raise money for Kidney Health Australia and to encourage organ donation.
Mrs Robinson said she hoped the event would spark a conversation in every Chinchilla home.
"You have to let your family know if you are serious about being an organ donor," she said.
"Ultimately, they will be the ones passing on the message if it even comes to it."
Mrs Robinson said Robbo would unfortunately miss this weekend's event after the Royal Flying Doctor Service flew the brave 21-year-old to Toowoomba on Sunday to be treated for pneumonia.
The rest of his family will walk for him on Sunday as he recovers in hospital, with x-rays this week confirming his condition was improving.
Robbo's first kidney transplant, which lasted 11 years before recently failing, was thanks to a 16-year-old who had told his parents he wanted to donate his organs before he was killed in a skateboarding accident.
The Chinchilla 5km walk/run is open to all ages and abilities.
Adult registration is $10, children 12-years-old and under are free, and a group of 10 can register for $50.
Registration is from 8.30am on Sunday.
The walk starts at 9am at Chinchilla's Queens Park, across the road from the pool, and a BBQ and family entertainment will be held for all participants after the walk.
For more information phone Bronwyn Robinson on 0458 169 543.
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